Porphyria (por-FEAR-e-uh) is a group of liver disorders in which substances called porphyrins build up in the body, negatively affecting the skin or nervous system. The types that affect the nervous system are also known as acute porphyria, as symptoms are rapid in onset and short in duration.
Symptoms of an attack include abdominal pain, chest pain, vomiting, confusion, constipation, fever, high blood pressure and high heart rate. The attack usually lasts for days to weeks. Complications may include paralysis, low blood sodium levels and seizures. Children with severe porphyria conditions without effective treatment may not survive to adulthood. Our patient group "Porphyria Care Center" wish to support more porphyria patients to improve possible treatments of the disease.
For more information of Porphyria Care Center ("卟啉关爱中心"), please write to us at patients@apricusbiopharm.com
了解更多"卟啉关爱中心"相关信息,敬请联系:bd@apricusbiopharm.com
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